PNH is a rare, life-threatening blood disorder caused by the abnormal presence of red blood cells that lack a protein called hemoglobin. The PNH Symptom Checklist is important because it helps people with PNH track their symptoms and helps doctors better understand how the disorder affects their patients. This information can help doctors make decisions about treatment and manage the disorder more effectively.
An elevated body temperature above the normal range of 98.6°F (37°C).
A sensation of discomfort, distress or agony in the abdomen region that may be localized to one spot but is more often diffuse (spread out over a large area) and can range from mild to severe.
The feeling of wanting to vomit or actually vomiting due to an upset stomach or other illness.
Frequent watery bowel movements with increased frequency compared to a person's usual pattern can cause dehydration and electrolyte imbalances if not appropriately managed.
A general term for pain anywhere in the head, typically on both sides of the head, that may be accompanied by nausea or other symptoms.
A decreased appetite and/or lack of desire to eat food.
Unwanted weight loss is caused by an inability to absorb nutrients and/or a decrease in caloric intake.
A feeling of exhaustion or lack of energy is often experienced after physical activity or during times of stress.
Muscular aches and joint pain due to inflammation, overuse, and/or injury can range from mild to severe.
Visible changes in the skin such as redness, bumps, blisters, etc. are often accompanied by itching and/or burning sensations.
A deficiency in red blood cells or hemoglobin can cause fatigue, pale skin, dizziness, and other symptoms.
Excessive sweating during the night that is not caused by a fever or extreme heat.
A dry or wet cough accompanied by a sore throat can be caused by a virus, allergies, and/or other illnesses.
A feeling of discomfort due to an accumulation of mucus in the nose, chest, and/or throat that can cause difficulty breathing.
Abnormal swelling or enlargement in the body can be caused by injury, disease, or an allergic reaction.
A discomfort in the center of the chest that may spread to other areas of the body and is often associated with heart conditions.
Feeling out of breath after minimal activity due to an inability to take in enough air when inhaling.
A feeling of being disoriented or confused about one's location, period, etc., as well as difficulty concentrating or understanding directions/instructions.
PNH is a rare blood disorder that occurs when some of the red blood cells in the body are abnormal.
The symptoms of PNH can vary from person to person and can change over time. Some common symptoms include fatigue, shortness of breath, chest pain, and easy bruising or bleeding.
There is no definitive test for diagnosing PNH. A variety of tests may be used, including blood tests, a physical exam, and sometimes a bone marrow biopsy.
No, PNH is not a fatal disease. However, it can cause serious health problems for some people.
There is no definitive treatment for PNH. Treatment options may include blood transfusions, medications, and in some cases, surgery.
PNH is a rare disorder, affecting fewer than 1 in 100,000 people.
The PNH Symptom Checklist is an important tool that can help individuals with PNH to track their symptoms and identify any changes in their health. The checklist can also provide information to healthcare providers so that they can better understand the individual’s symptoms and provide the best possible care.
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